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The terrorist inside my husband's brain
Topic Started: Oct 2 2016, 04:12 AM (157 Views)
George K
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Finally
Robin Williams' Widow

Quote:
 
As you may know, my husband Robin Williams had the little-known but deadly Lewy body disease (LBD). He died from suicide in 2014 at the end of an intense, confusing, and relatively swift persecution at the hand of this disease's symptoms and pathology. He was not alone in his traumatic experience with this neurologic disease. As you may know, almost 1.5 million nationwide are suffering similarly right now.

Although not alone, his case was extreme. Not until the coroner's report, 3 months after his death, would I learn that it was diffuse LBD that took him. All 4 of the doctors I met with afterwards and who had reviewed his records indicated his was one of the worst pathologies they had seen. He had about 40% loss of dopamine neurons and almost no neurons were free of Lewy bodies throughout the entire brain and brainstem.

Robin is and will always be a larger-than-life spirit who was inside the body of a normal man with a human brain. He just happened to be that 1 in 6 who is affected by brain disease.

Not only did I lose my husband to LBD, I lost my best friend. Robin and I had in each other a safe harbor of unconditional love that we had both always longed for. For 7 years together, we got to tell each other our greatest hopes and fears without any judgment, just safety. As we said often to one another, we were each other's anchor and mojo: that magical elixir of feeling grounded and inspired at the same time by each other's presence.
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"Now look here, you Baltic gas passer... "
- Mik, 6/14/08


Nothing is as effective as homeopathy.

I'd rather listen to an hour of Abba than an hour of The Beatles.
- Klaus, 4/29/18
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brenda
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..............
That's a sad disease, not that any disease is pleasant. Just read some general information about it online, and it sounds horrible.
“Weeds are flowers, too, once you get to know them.”
~A.A. Milne
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George K
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Finally
brenda
Oct 2 2016, 12:59 PM
That's a sad disease, not that any disease is pleasant. Just read some general information about it online, and it sounds horrible.
Yes.

Starz had a great show a few years ago, "Boss," in which Kelsey Grammar plays Da Mayor of Chicago. The show is all about corruption, power, greed, etc (it is, after all, Chicago), and Grammar did a great job playing a Richard Daley type of mayor.

In the first episode, the mayor is diagnosed with Lewy Body Dementia. After reading Williams' widow's article, it seems that the show portrayed it pretty accurately.

Sadly, the show only ran 2 seasons, but it was really fun to watch.
A guide to GKSR: Click

"Now look here, you Baltic gas passer... "
- Mik, 6/14/08


Nothing is as effective as homeopathy.

I'd rather listen to an hour of Abba than an hour of The Beatles.
- Klaus, 4/29/18
Online Profile Quote Post Goto Top
 
Mikhailoh
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If you want trouble, find yourself a redhead
Boss was intense. Wonderful show, and a tour de force for Grammer.
Once in his life, every man is entitled to fall madly in love with a gorgeous redhead - Lucille Ball
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