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little son #2
Topic Started: Nov 3 2005, 04:16 PM (219 Views)
apple
one of the angels
well, the little boy has been diagnosed with gastroesophageal reflux disease. He's been coughing for a year.. he has asthma symptoms kind of.. a lower esophagus sphincter muscles does not close. I can't see a specialist till January 10th, his doctor just went yikes, he's sick with the flu on top of it all and I can't do a thing. I've a prescription, that helps a little..I've googled and read articles. there is no cure, only successful management in a majority of the patients.

why do have to wait 2 months?
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jodi
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Poor kid! Poor you! January 10th?! That sucks. Can you get on their wait list, in case somebody cancels?

Does it help if you tilt his bed mattress up when he sleeps? I think my mom has some trouble with that. Or her husband. Can't remember. I just know they had to prop the front of the bed up on telephone books.

:) Jodi
:) Jodi
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pianojerome
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HOLY CARP!!!
"A common disorder marked by frequent or severe heartburn. The burning feeling occurs when stomach acid flows up into the esophagus."

Yuck. I hope he gets better.
Sam
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tcmod
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apple,

wife is a gastroenterologist..she said they will probably put your son on nexium or protonix...some kind of proton pump inhibitor...if he is heavy it would help to lose some weight.

good luck :)
Dead girls don't say no, but you still have to buy them flowers
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Mark
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HOLY CARP!!!
on no! :(

Tell him I hope he feels better soon!
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DivaDeb
HOLY CARP!!!
apple,

That was little one's problem here for first two years. Hers was not treatable medically, so she ended up needing a fundo-plication surgery, which is not a great thing, so the omeprazole (prevacid, nexium, prilosec etc) type meds need to be exploited as fully as possible first.
GERD is a real problem for kids with asthma the acid keeps everything inflamed...I would suggest that until you see a doc, you keep him on the script, elevate his bed (stick cinder blocks under the feet at the head of the bed, and keep him from eating before he goes to bed (like...he should quit eating say, 2-3 hrs before he goes to bed). No pop...the bubbles aren't good. Don't eat right before wrestling either...need to stay pretty much upright and not real active for the first hour or so after eating. Don't do kid things...like eat hanging upside down from the swing set, or do handstands right after dinner.

I do pretty much know more than anyone ought to have to know about this...give me a holler. There are parent groups I can put you in touch with as well, if his turns out to be a kind of chronic thing. We've done pediatric GERD for years now. It's an important thing to get under control. Chronic esophageal irritation is not just bad feeling, it can cause damage that is dangerous.
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Jack Frost
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tcmod
Nov 3 2005, 08:49 PM
apple,

wife is a gastroenterologist..she said they will probably put your son on nexium or protonix...some kind of proton pump inhibitor...if he is heavy it would help to lose some weight.

good luck :)

Nexium if your health insurance pays for prescription drugs and if it does not then Prilosec, which is now OTC and cheaper and almost identical.

jf
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Let it be said by our children's children that when we were tested we refused to let this journey end, that we did not turn back nor did we falter; and with eyes fixed on the horizon and God's grace upon us, we carried forth that great gift of freedom and delivered it safely to future generations.
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DivaDeb
HOLY CARP!!!
He's pretty young, Jack. The ped will need to make sure the dosage is correct. When my little one was so sick, they were just starting to use omeprazole for kids. It wasn't in the tablet form it is OTC, just in capsules. The enteric coating on the little beads inside the cap was important, the medicine needed to reach the tummy intact, so it couldn't be made into a suspension for kids. Sooo...every morning, I had to break open one of the caps and COUNT the little beads to give to her in a spoonful of applesauce or yogurt. They rolled all over the place...it was nuts.
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Aqua Letifer
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ZOOOOOM!
My goodness; hope he gets better Apple!
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Fizzygirl
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Apple what a tough break for your little guy. Is there a nurses line you could call to have them get in touch with a doctor to see about the right dosage of medication? They might be able to prescribe something for him or recommend Prilosec in advance of his seeing the doctor in January.
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Jack Frost
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DivaDeb
Nov 4 2005, 12:40 AM
He's pretty young, Jack. The ped will need to make sure the dosage is correct. When my little one was so sick, they were just starting to use omeprazole for kids. It wasn't in the tablet form it is OTC, just in capsules. The enteric coating on the little beads inside the cap was important, the medicine needed to reach the tummy intact, so it couldn't be made into a suspension for kids. Sooo...every morning, I had to break open one of the caps and COUNT the little beads to give to her in a spoonful of applesauce or yogurt. They rolled all over the place...it was nuts.

Right. Right.

I wasn't trying to play doctor. My point was that Prilosec and Nexium are both made by AstraZeneca. Prilosec was a huge money maker for them, but when it's patent protection was up and generics could be made, they quickly made Prilosec OTC and had Nexium approved as a "new" prescription only drug. My understanding is that they are almost identical, but Nexium has the benefit of a huge marketing campaign and costs a lot more.

jf
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Let it be said by our children's children that when we were tested we refused to let this journey end, that we did not turn back nor did we falter; and with eyes fixed on the horizon and God's grace upon us, we carried forth that great gift of freedom and delivered it safely to future generations.
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DivaDeb
HOLY CARP!!!
Apple, if they gave him a script already, I understand why they are not seeing him until January. If the meds work (which we'll all hope for!) they take some time. The meds will take care of the acids and may eventually help the tone of the lower esophageal sphincter. But, before things feel much better or work right again, the tissues themselves have to heal up which just takes time in a healthier environment created by the meds. All the inflammation has to be gone for the normal peristalsis of the organs to resume. Until that time, the movement of food through the system slows way down, which makes the problem even worse. So...if he's got medicine, they may just want him to take it and see if they can get him in better shape with that alone. That is the route to go if you can get it to work. The other options are fraught with peril. There is no sense putting a child through a bunch of invasive procedures if the medicine is going to help. If he's not a lot better in January, they'll probably order some tests to see if the lower esophageal sphincter works well enough. The tests are not much fun, so hopefully he'll just heal up and they won't have to do them.

Meanwhile, if he has a climb in the frequency or severity of his asthma attacks, gets bronchitis or pneumonia or throws up anything that looks like coffee grounds, insist that he be seen immediately.

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Freedom
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that's awful apple. :( my gran has that and she watches the kinds of stuff she eats and stuff like that. Hope things look bettter when you see the specialist.

"A wise man feareth, and departeth from evil: but the fool rageth, and is confident."

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The 89th Key
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Best of luck apple! :)
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